Sometimes it is the littlest things that push right to the edge.
Suzie, our sweet, sweet Suzie has a raft of challenges. And there are times when I want to shake a fist at God, or fuss or scream, or question Him about all of them. And say "why...why her?" And I have done all those things...the screaming...the questioning...the crying and yelling... in the past. Many, many times. Cause it seems to me, sometimes, that she has more on her than she deserves.
When Suzie was six-months-old she had bacterial meningitis. And as a result of that tough time, she has a number of challenges:
- brain injury
- significant complex seizure disorder
- cerebral palsy
- the requisite cognitive and physical delays and shortcomings from above mentioned stuff
- lots of side effects from multiple medicines to address the issues from the above mentioned stuff.
But you want to know the one that sends me over the edge sometimes. Eczema. Freakin' eczema. A skin rash.
But, seriously, doesn't it seem a bit like piling on here, what with her having a bad case of eczema? Shouldn't she get a pass on the simple little stuff like eczema what with her having a season pass on all the big stuff like brain injury and seizures? Shouldn't we just be able to say, "you know what, I think we can call it a day on bad stuff here. She seems to have reached her limit."
She gets the eczema bad on two of her toes and two of her fingers. And it starts to itch and bug her and we have to mess with more medicine, and sometimes I just think that "surely God, with all that she has going on, we could find a way to not have the dang eczema..."
But so far, there is no response about the eczema.
I know that God has a great and wonderful purpose for Suzie. We have seen first hand hundreds of times that her sweet, gentle disarming approach to life has changed the hearts of those more stubborn, or serious, or self-engaged. I know that He has formed every microscopic cell and every beautiful sandy-brown hair, and every one of her longer-than-average batting eyelashes...and that He has given her skin that causes eczema on two of her toes and two of her fingers.
And I know that I don't know why she has to deal with this, in perspective, tiny little itch to scratch. It just seems like she has enough already.
Is that too much for a dad to ask?