Since she got sick almost 12 years ago Suzie has had seizures.
Sometimes she has runs of big,nasty greasy seizures, other times it is little more than an inconvenience. Like "oh look...Suzie just dropped her pencil had a seizure. That sort of incidental seizure.
Which really sounds funny. But we have been round and round with these things for years, and so I guess you can get a bit blase about the whole thing.
Especially since the implant.
A bunch of years ago, maybe six or seven, Suzie had a vagal nerve stimulator implanted. Somehow, and the doctors are really not sure how. And in some cases, and the doctors are really not sure why in some people more than others, the vagal nerve stimulator tricks the brain into thinking that it just had a seizure so that "hey no reason to have a seizure here...nothing to see...just move along."
And for Suzie it has worked like a champ for the past six or seven years. She still takes a fistful of medicine twice a day, but the vagal nerve stimulator seems to have done some pretty cool things.
You can tell when the thing is working because every few minutes, when it fires off and does its brain-tricking-thing,it cause her voice to flutter. Like she is talking into a fan. Very cool stuff cause it is a sign that this little wonder is doing its job.
But recently the every-three-minute-fluttering seems to have stopped. Seems that vagal nerve stimulator's have batteries that eventually give out. We knew this from the start so we will need to go back to the doctor for an official test - hook her up the the VNS battery tester and find out for sure. And we all know that dead batteries are not a big deal - you just pop open the flashlight or Game boy and change out the batteries.
Except in this case, the Gameboy is buried in her chest cavity.
So we got some figuring to do - all the while walking the seizure high wire with no electronic brain-tricking-thingy do its little flutter dance in her chest.
Which is frankly giving me a little flutter dance in my chest...
Mabel's birthday is Wednesday. Big day. Double digits. The big 1-0.
Frankly I am a bit nauseas about my baby being ten. In dog years she's 70. And that's old.
We were spending a few minutes this morning talking through the week and she said that she "wanted me to stop and get 'the fluffy cookies with all icing.'" So she could take them to school for lunch on her birthday.
So I said, "Mabel, how about if I bring them with me when i come have lunch with you on your birthday?"
To which she replied, "just bring them with you...that's what we do every year."
I knew that I have lunch with the girls on their birthdays (except at middle school now, which is TOTALLY not cool...)but maybe didn;t realize that it was as much a ritual for me as for them.
It is so important to build in ritual and repetition for kids. And also discover (and remember) the things that have become ritual and important for them.
The Beautiful Bride has been out of town for 84 hours.
Since this little Show Offs Art thing she dreamed up a year ago is taking off. So she and her sidekick have been at The Market in Atlanta since Thursday. And will not return until late Tuesday. And then leave again on Thursday. And retrun on Monday.
And then not leave for a long, long time...
But back to me.
She has been gone for nearly four days and which mean that I have been in charge for four days. Which is often fairly dicey at best.
We have been busy and have done a lot of things, but to just break things up, here is a list of the things we have not done in the past 84 hours:
Eat at Sonic
Dust the furniture
Go to church (ooops...)
Sold Girl Scout cookies
Bathed the dog(we have however, bathed ourselves...)
Eaten fresh vegetables
Not eaten too much ice cream (get the double negative)