True Freedom
There are days when I feel sad for Suzie.
There are days I feel sad when maybe she watches other kids playing a game that she doesn't understand, or when even the very simple reading books have words that trip her up. I get sad when she has those $&%#$ seizures, ooh I hate those the most. I get sad when I think that probably she will never know what it is to be truly in love and to get married.
I feel sad because I think that sometimes she is "stuck" in her own body, having thoughts or ideas that she can't express or share because of all her challenges. Or that she lacks the inherent freedom that we all enjoy so much. She can't (and very possibly won't) be able to just hop in the car, or take a last minute plane trip, or even run to the mall.
But then there are days like yesterday.
Suzie and I took a late afternoon ride to the "Tiger Store" for a much needed get-out-of-the-house break. As we were pulling into the parking lot, I glanced in the rear view mirror and saw Suzie with her eyes closed, hands up in the air, singing as sweetly and as softly as the best of all the angels in heaven...
"I will give you all my glory,
I will give you all my praise.
You alone, I love to worship,
You alone, are worthy of my praise."
At that moment I decided that instead being a "prisoner" she was perhaps the free-est person I know. She loves to sing and and worship and does so freely, not concerned with what anyone thinks or says. She loves to hop and will hippity-hop whenever she feels like the situation demands it. She will smile and laugh and look, without the least concern about what anyone in the next row or next room or next anything thinks.
She is free of nearly all the stuff that drags many of us down - societal expectations, what you look like, who you know, how much money you have, what kind of car you drive...
She is not interested in the least in any of that, and for today at least, I think she may be the free-est person I know.

I am not a blogger, but at your invitation, I read your blog True Freedom. Wow, what a blessed thought...True Freedom, It is truely known by very few on this earth, your precious daughter among them. The rest of us will have to wait until we get THERE to enjoy what she enjoys right now.
Posted by: bill | January 25, 2006 at 03:47 PM